Putting Healthcare in Your Hands

Everyone on this planet has a desire for a long, disease free, healthy life – one of the few human activities that provokes little argument. And yet, the average person does very little, if anything to improve the struggle against disease.  Most individuals think of disease as natural and accept it as inevitable.

Are you aware that a select few people grow old and eventually die without long periods of illness?  By making available millions of people’s data to scientists and computer programs, you can be a part of the team that improves research astronomically.Don’t you think we should question whether we can all grow old and eventually die of natural causes free of disease and illnesses? Ironically, we have the medical expertise and technology to achieve just that through good research! Although we are headed in the right direction with daily advances in the fight against diseases, the results of which have already lengthened and raised the quality of many lives, until we have a more comprehensive effort by many individuals, we won’t be rushing forward at our fullest potential. Many diseases, and the resulting illnesses, still exist and are drastically decreasing the quality of people’s lives and preventing them from living as long as they could. At the current rate, if you aren’t already, you and your loved ones will join the ranks of those engaged in a personal fight with diseases. We aren’t progressing nearly as fast as our abilities and technology allow.

There’s something relatively simple that you can do about this situation. By making available millions of people’s data to scientists and computer programs, you can be a part of the team that improves research astronomically. “Why do we need your help?”, you may ask. Many countries, such as the U.S.A. with no single payer system, have no single repository to makes people’s health data easily accessible.At the current rate, if you aren’t already, you and your loved ones will join the ranks of those engaged in a personal fight with diseases. We aren’t progressing nearly as fast as our abilities and technology allow. Few, if any, would argue that we will exponentially improve research in healthcare by increasing participants and data in studies. So what’s holding us back? In short, no comprehensive methodology to efficiently gather large amounts of data from around the world. Many countries, such as the U.S.A. with no single payer system, have no single repository to makes people’s health data easily accessible. As you might guess, there’s also no efficient methodology to pull the disparate systems from the many nations around the world into an accessible source of data for critical research. How can the human race possibly gather data from around the world given the thousands of differing legal, medical and technological differences that exist not just between countries, but within the countries themselves? The answer: by appealing to your common sense and the cooperation of others like you. Let’s be very clear, with a little health data from you and others (with identifying data removed), we can push healthcare research forward in unprecedented ways.

Here’s how you can play a role in accomplishing the task. The Human Health Research Project is developing a free web and mobile application, to coordinate people’s involvement with medical research around the world. The Human Health Research Project matches you with researchers making your de-identified data available to researchers that you approve. Non-scientist individuals who become actively engaged in research are sometimes known as Citizen Scientists.

The HHR Mission

To assist researchers progress toward a better quality of life for you and your loved ones, ask yourself to take note of the strides already made by researchers, believe that together we can create real change in our lives, and give a little of your time… a little of your time to greatly increase the effectiveness of medical research.  If you are willing to spend a few minutes a month or are eager to become actively involved, then join our community below to become an HHR Citizen Scientist actively eradicating diseases.

What is the HHR Project?

Here’s how the HHR Project works: Researchers submit the profile of participants they need to our repository and the HHR Project then matches and connects members (citizen scientists like yourself) to those researchers upon mutual agreement. This not only provides a matching service for both parties, it also presumably speeds up the enrollment process. Depending on the type of research, members will have opportunities to be passively involved where they basically just provide data; or, they may choose to be more actively engaged as Citizen Scientists where opportunity allows. The ease of this process will increase the number of participants involved in medical research projects. Depending on the type of research, members will have opportunities to be passively involved where they basically just provide data; or, they may choose to be more actively engaged as Citizen Scientists where opportunity allows. And finally, the HHR Project’capabilities keep researchers and participating members engaged throughout the research process by abandoning antiquated communication methods that are expensive and time consuming.

With a little effort by all of us, we can provide research outcomes that are substantially more accurate and available to patients much more quickly. It’s hard to conceive the boost medical research will experience when:

  • It’s much easier and less time consuming to enroll motivated participants.
  • It’s far more efficient for participants and researchers to stay engaged.
  • The number of participants engaged in research can be as large as the research design requires and the researchers and their computers can manage.
  • All research is more accurate and representative of the entire population and brought to the public at a faster rate.

The threat of those diseases that haunt you and your loved ones are far more likely to be resolved before they threaten your wellbeing and life if we join together in this war on disease. Make no mistake, we are in a deadly race – a race to protect ourselves from experiencing illness and disease that has caused suffering for so many who’ve gone before (side note: waiting on governments to understand the need and lead the way doesn’t seem expedient).

Frequently Asked Questions

Will the HHR Project sell my data?

No. The Human Health Research Project team does not earn revenues by selling your data to researchers. Instead, we are developing creative ways to finance the development and ongoing operations.

Are there other benefits beyond generally helping to improve healthcare research?

By joining the HHR Project, members may well benefit beyond improved research by receiving coupons, discounts, etc. from medical business such as your health plan. Also, the research itself may provide additional benefits such as getting free access to medications, having genetics analyzed etc. These “perks” will depend on the research project and its supporters.

Do I need to have a chronic illness to join the HHR Project?

No, anyone can join the Human Health Research Project and we actually encourage people of all backgrounds to join in our effort to improve medical research opportunities.

What kind of researchers will have access to my data?

First and foremost, nobody’s data goes anywhere without that person’s permission. Opportunities will be available to all legitimate research teams once members like you approve the use of their data. The criteria that determines what makes a team “legitimate” will be recommended to the HHR Project team by the healthcare research community itself. If the team is considered legitimate by the standards recommended by the research community, the HHR Project will not limit those interactions. We are here to facilitate, not dictate.

Who can become a member of the HHR Project?

The HRR Project is for everyone: all ages, ethnicities, genders, etc. The world needs participants from all demographics to maximize the potential for eradicating disease.

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